Our Impact

Community engagement for a strengthened NCD response

We work to strengthen the capacity, sustainability and involvement of NCD civil society and people living with NCDs in the response. Learn how NCDA is leading global progress on community engagement—one of our four core impact goals.

 

OVOV Global Advisory Committee member Prisca Githuka speaking at a press conference at the 2025 Global NCD Alliance Forum in Kigali, Rwanda.

Our Goal

Cultivating a vibrant, well-equipped NCD civil society

We focus on strengthening the capacity of national and regional alliances, supporting meaningful involvement of people living with NCDs, and protecting civic space for inclusive health governance.

Despite growing recognition of the value of community voices, civil society and people living with NCDs remain underrepresented in policy and decision-making. Yet their involvement is essential to ensure policies are grounded in lived realities, equitable, and accountable—driving more sustainable and effective NCD responses.

Explore highlights of NCDA's work on community engagement
Meeting in Malawi Global Week for Action on NCDs

Integrating lived experience in global processes

For the first time, people living with NCDs were formally included in preparations for a UN High-Level Meeting on NCDs. Through our Our Views, Our Voices initiative, NCDA partnered with WHO to maximise meaningful engagement across our network.

In December 2024, the 2nd WHO Symposium on the Meaningful Engagement of People Living with NCDs, Mental Health Conditions, and Neurological Conditions brought together lived experience advocates to co-develop advocacy priorities and an action plan for the fourth UN HLM on NCDs.

Ahead of the Symposium, NCDA mobilised its global community to respond to WHO’s consultation on draft advocacy messages—gathering insights, identifying gaps, and ensuring alignment with the real needs of those most affected. 

Members of our Global Advisory Committee shaped the feedback, reinforcing the role of lived experience in global policy processes.

Watch and listen: People living with NCDs are driving change

Take a deep dive
Practical guides for advocacy

Since 2017, Our Views, Our Voices has supported people living with NCDs to co-develop advocacy agendas at national and regional levels. In 2023, the Africa Advocacy Agenda was launched—the first region-wide agenda. In 2024, the Georgia NCD Alliance began developing the first national advocacy agenda in Eastern Europe. These agendas strengthen the role of lived experience in policy-making, anchoring advocacy in real-world priorities and challenges.

The fifth series of the NCD Diaries put a spotlight on equity and Universal Health Coverage (UHC), featuring powerful testimonies from six countries. Advocates shared stories of how discrimination and financial barriers limit access to care, while mechanisms to overcome inequities support people living with NCDs. These diaries—written, visual, and audio—were widely used in NCDA’s campaign efforts for HLM4 and featured during the 2024 Global Week for Action. 

Kenya and India were the first countries to pilot NCDA’s new equity assessment toolkit in 2024. Through Our Views, Our Voices and the Advocacy Institute, both alliances gathered data from marginalised groups, from refugees to LGBTQIA+ communities, informing national equity reports and advocacy.

This work not only highlighted systemic barriers to care but also ensured that the voices of those most affected were front and centre in shaping policy responses.

As part of the new Regional Advocacy Track, NCDA supported alliances across Africa, the Caribbean, Latin America, Southeast Asia and the Eastern Mediterranean in advancing regional campaigns and advocacy planning for the 2025 HLM.

Activities included regional consultations, use of NCDA’s Accountability Toolkit, and participation in WHO Regional Committee Meetings, where alliance representatives delivered strategic statements on NCD priorities.

Through Our Views, Our Voices, NCDA elevates lived experience in decision-making. In 2024, we released Five Countries, Five Stories, a resource capturing lessons from national alliances in Ghana, India, Kenya, Malaysia, and Vietnam on embedding people-centred approaches across advocacy, programme design and service delivery. It highlights that - while local contexts around the NCD burden and response are diverse - meaningful engagement of people living with NCDs plays the same crucial role in all countries of the world.

 

In 2024, NCDA launched the third phase of the Advocacy Institute, supporting NCD alliances in 20+ countries across three tracks: Seed, Accelerator, and Regional. This included training 61 advocates in coalition building and 40 in strategic advocacy planning, with post-training surveys showing a marked increase in confidence on key advocacy skills.

Grants and tailored technical support helped alliances in Bhutan, Georgia, and Cameroon lay foundations for national action, while countries such as Ghana and Kenya deepened their policy impact and public visibility.

Lived experience advocates leading progress on NCDs
Woman in india with boxing gloves NCD advocates
Woman in india with boxing gloves NCD advocates

 

Going Full Circle

Our micro-documentary Going Full Circle tells the story of two women in India living with type 1 diabetes and leading peer support initiatives through the Blue Circle Diabetes Foundation. Their work helps break down stigma, builds circles of care, and empowers women in underserved communities. 

Samuel Kumwanje, lived experience of CKD, from the mini film 'Raise your voice' in Malawi
Samuel Kumwanje, lived experience of CKD, from the mini film 'Raise your voice' in Malawi

 

Raise Your Voice

In Raise Your Voice, two powerful advocates from Malawi share how personal experience is driving community change. Their stories show how advocacy rooted in lived reality can reshape access to care and amplify rights-based health responses.

 

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