Lived Experience Board Member

I am Chikhulupiliro Stanley Ng’ombe, from Malawi, an LMICs in the Southern part of Africa. At 8 years old I was diagnosed with Leukaemia and epilepsy diagnosis after 3 months into chemotherapy as a side effect. Though our medical facilities do not offer state of the art medical care, All in all, I never allowed the condition to conquer me and I always live a full and joyous life. Early in my treatment doctors noticed my ability to talk and encourage fellow patients of all ages (something I must have got from my late mum). The doctors would use me to talk to other cancer patients and later various conditions. I set up a non-profit organisation called Cancer Survivors Quest in 2011, which is patient centred. We support patients in reducing out of pocket expenses, though we are not donor funded. Later in 2016 together with a couple of organisations we set up an NCD Alliance in Malawi.

Blantyre
Malawi